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ADHD and autism at risk of over-diagnosis, says government review

The review, which focuses on younger people, warned there was a risk society was moving from an era of under-diagnosis to over-diagnosis.

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England risks entering an era where autism and attention deficit hyperactivity disorder are over-diagnosed, according to a government-commissioned review published on Tuesday.

The inquiry, conducted by prominent clinicians, examined trends over the past 25 years. It warned that diagnostic rates among certain younger age groups appear to exceed anticipated prevalence across the wider population. Official figures cited in the report indicate that over four percent of children aged six to 17 carry an autism diagnosis, compared with estimated population levels of between one and two percent. While the authors noted that older underlying data makes it difficult to prove widespread over-diagnosis definitively, they cautioned that natural variations in behaviour and cognition risk being medicalised.

Commissioned ten months ago by Wes Streeting, the investigation focused closely on children and adolescents, who experience the highest diagnostic rates. The findings showed that young individuals diagnosed before turning 17 face four times the risk of becoming disconnected from education, work, or training between the ages of 16 and 24. Specialists expressed concern that clinical labels frequently cause people to be viewed through their deficits rather than their capabilities, negatively impacting education, careers, and personal lives.

The review also addressed significant delays in the assessment system. Patients often wait years for evaluations, placing immense strain on families who require educational and personal accommodations. To ease the backlog, the authors advised triaging existing waiting lists to fast-track individuals with acute needs, while directing others toward practical community assistance, workplace adjustments, or lifestyle interventions for issues such as anxiety and poor sleep.

Systemic rules introduced in 2014 made formal clinical diagnoses a prerequisite for securing educational adjustments in schools. The report's chair, Professor Peter Fonagy, stressed that formal assessment should not remain the sole route to gaining support, arguing that diagnosis must be preserved for those who need it while expanding non-clinical access pathways.

Furthermore, the inquiry advocated for stricter oversight of independent healthcare providers conducting assessments on behalf of the National Health Service. Citing inconsistencies in diagnostic standards, the authors recommended banning commercial advertisements for these services. Wider factors, such as digital technology, social media, and broader financial pressures, were also identified as contributors to escalating emotional distress among youth.

Charity leaders offered critical assessments of existing infrastructure. Mel Merritt of the National Autistic Society remarked that consecutive administrations had let down autistic individuals, emphasizing the urgency of constructing a supportive framework. Abigail Ampofo from the charity YoungMinds stated that young people frequently feel unfairly blamed for emotional distress, welcoming the findings as recognition that public systems require fundamental reform.

The government accepted the recommendations and confirmed plans to introduce tighter regulations for private assessment providers. Ministers intend to present a revised support framework in an upcoming mental health strategy later this year, with Health Secretary Yvette Cooper highlighting the value of early intervention for neurodevelopmental and psychological difficulties.

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